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Post by Scrumpy on Jun 17, 2002 1:58:13 GMT -5
Hi for those i haven't spoke to yet.... hello my name is Scrumpy i am a sleepaholic....  No really i have had M.E. for 5 yrs and am 29 yrs old now, before M.E. i had a good job, plenty of money and a social life..... Thank god iv'e still got my looks..ha ha .. At the moment i am well enough to work part-time for charity... but energy levels/ brain fog/ headaches etc etc ... change all the time so its still iffy if ya know what i mean! But try telling that to the social doctors!....  anyway not going to bore you all into unconsciousness (thank god also for spellcheck) with my life story...speak soon... Scrumpy xx   |
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Kathy
Fully grown
Posts: 143
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Post by Kathy on Jun 17, 2002 12:39:33 GMT -5
 Well hello Scrumpy, I don't believe we've met. I'm Kathy and I do love your microwave smiley.  Hate it when I blow stuff up in the micro.  Kathy
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Post by PurplySparkleyJoey on Jun 17, 2002 18:10:56 GMT -5
.... copleatly drifint off topic here ... but the first time i went to Frans house after school she decided she wanted to cook somthing to look good!! So the only thing in the house was popadoms (them chrispy things you have with currys) Any whoooo.. rather than popping them in the microwave for 10 seconds she put them in for 10 MINS!!! LMAO!!!  she started a fire  and luckly i got there in time to save the day!! lol... did i tell you i was HEMAN?? dont tell everyone .... cant blow my cover! 
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Post by PurplySparkleyJoey on Jun 17, 2002 18:12:48 GMT -5
Any whoooo.. back on track!! Sorry to hear you had that blassted ME for soooo long! Oh well, you might make a full recovery soon!!
Glad you manage to work a bit too .. brings the pennys in eh!! 
Lovely to have you with us petal,
Jo xx
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Kathy
Fully grown
Posts: 143
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Post by Kathy on Jun 17, 2002 21:37:38 GMT -5
ROFL! Poor Fran! That's hilarious though... Way to save the day Super Jo!  What does ME stand for again? We call it CFS here. Kathy |
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Post by Scrumpy on Jun 17, 2002 22:54:17 GMT -5
Hi again.....Thankyou Kath nice to meet you too! Hi jo! it would be nice if i got paid for work!! but am volunteer worker for charity....( no one is gonna pay me for drinking tea all day..lol ..not even Maccy dees)  Speak Soon Scrumpy x  |
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Post by Funky-Fran on Jun 19, 2002 17:48:11 GMT -5
OMG OMG OMG!!! I sooooooooo knew that'd come up somewhere! How embarressing! Soz bout the ME bringing u down scrumpy |
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Post by PurplySparkleyJoey on Jun 20, 2002 0:43:30 GMT -5
Hiya Kathy, ME is called CFS too .. there are lots of names for it. The medical people like CFS and the ill people like ME .. either way they both carry a really bad stigma with them 
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Kathy
Fully grown
Posts: 143
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Post by Kathy on Jun 20, 2002 6:05:14 GMT -5
Yeah, I hear that. Stigma kinda comes with the territory of chronic illness  Kathy |
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Post by PurplySparkleyJoey on Jun 20, 2002 18:41:56 GMT -5
Its very ture Kathy ... and sad too. But people with MS used to be told that they were hysterical and had huge phyciatric ploblems untill they finaly put money in to resurch and found out that not only was it a physical condition but that it was responcaibel for peopls deaths.
I know for a fact that people with very sever ME who are untreated becasue of poor medical staff can die, although it is not a termnal condition.
Having said all that about ME believed to be phycological, they will not let us give blood .. ever! even if we 'recover' just in case it can be transfered.
I dont know lots about the problems with funding in to the resurch of ME but i do know its MORE common than MS and there is no funding for resurch in the UK.
Persoanly i think its disgusting cinsidering the amount of sufferes.
lol... should have got me started!!
Sorry simon ... i seem to have stolen your post!!
Jo xx
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Post by Funky-Fran on Jun 20, 2002 22:30:09 GMT -5
God how confusing!  |
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Kathy
Fully grown
Posts: 143
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Post by Kathy on Jun 21, 2002 0:46:05 GMT -5
What? They won't let you give blood, but they're not willing to agree that it exists? That's the stupidist thing I've ever heard. I can understand the blood thing, cause as you say, there's probably not a lot of research on it, and why not be cautious, but to turn around and say that it's phsycological is insane. Why can't doctors and the medical establisment in general just admitt when they just don't know? Why is it that they have to have an opinion about everything even if the research isn't conclusive? This is kind of a sore spot for me cause I spent 2 years seeing different doctors and only one of them actually said that he just didn't know what was wrong and he sent me to a specialist. But the rest of them had plenty of rather inconsiderate things to say, i.e. you just need to quit worring about it, you're under too much stress, this is all in your head, and my personal fave, this is a reaction to childhood trauma. Now, I have biopsies to prove my illness, but it still annoys the hell out of me that people and doctors have a hard time acknowledging an illness unless there is physical proof. It's just so infuriating. Sorry bout the rant.  Kathy |
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Post by PurplySparkleyJoey on Jun 21, 2002 10:21:13 GMT -5
((((((((Kathy))))))))) Grrr Im soooo sorry to hrea what happened to you when you started getting poorly I think doctors have it geneticaly engeneried into them that they CANT EVER BE WRONG AND HAVE KNOLAGE OF ALLLL
If i were a bit more inteligent i would train and kick doctor ass ... but sorry guys .. but havent got the brains!! 
All my love to you Kathy, i'l talk to you soon petal
Sorry for steeling for post Simon 
Jo xx
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